This study is being conducted by Sickle Cell 101, UCSF Benioff Children's Hospitals, and BCH Diversity, Equity, Inclusion and Anti-Racism Council to address racism in SCD care.
18 years or older
Survey
Yes
N/A
All types of SCD
Global & Remote
Investigating Hydroxyurea adherence in adult SCD patients, Clinical Psychology Ph.D. candidate Lance Archer's study seeks to improve interventions.
18 to 65
Survey
Yes
N/A
All types of SCD
United States and Canada
Sickle cell trait study to determine which sickle cell trait carriers are at risk for Exercise Collapse Associated with Sickle Cell Trait (ECAST).
18 to 45
Other
Yes
N/A
Hb AS - sickle cell trait
US participation only
This study aims to explore perceptions of sickle cell trait (SCT), SCT testing, understand related complications/experiences, and develop community-driven resources for SCT.
18 years or older
Survey
Yes
N/A
Open to everyone
Global & Remote
A research study investigating how well NDec works in people with sickle cell disease.
18 years or older
Clinical
Yes
2
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
US
Canada
A study that aims to gather insights into painful crises in people living with sickle cell disease.
18 years or older
Digital
Yes
N/A
SCD type SS
SCD type Sβ0 thalassemia
USA
11 Mar 2024
Bluebird bio, Inc. (NASDAQ: BLUE) ("bluebird bio") today announced it has signed its first Medicaid outcomes-based agreement for LYFGENIA™ (lovotibeglogene autotemcel, also known as lovo-cel) with the state of Michigan.
Learn more12 Jan 2024
The study was presented at the annual meeting of the American Society of Hematology, underscoring the intricate needs of children with SCD and their families. It suggests that public health initiatives should be directed towards areas with higher social vulnerability to improve access to care.
Learn more08 Dec 2023
Today, the U.S. Food and Drug Administration approved two milestone treatments, Casgevy and Lyfgenia, representing the first cell-based gene therapies for the treatment of sickle cell disease (SCD) in patients 12 years and older.
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