1 United States site
18 Years to Years
Adult biological parents of children <3 years old with Hemoglobin S-trait identified by NBS who present for SCT education at NCH. English proficiency will be required
Parents who self-report that they do not have functional verbal English (report that they are not proficient) or if they request an interpreter for the education session.
Parents who have previously attended an education session about an abnormal hemoglobinopathy trait
Parents who self-report that they have a child with SCD
Parents who self-report that they have SCD.
Parents who report that they or their partner is currently pregnant