This is a study for parents of young children with Sickle Cell Trait (SCT) identified by newborn screening who are referred and present for in person SCT education at the Institution.
The study will determine the feasibility of implementing a SCT education program (SCTaware) that is appropriate for all parents, including those with low base knowledge and low health literacy and then test if results in high and sustained SCT knowledge.
| Amy Yekisa | |
| 614-722-6570 | |
| [email protected] |
> 18 Years
Hemoglobin S-trait
Not Applicable
Interventional
All
Other
Adult biological parents of children <3 years old with Hemoglobin S-trait identified by NBS who present for SCT education at NCH. English proficiency will be required
Parents who self-report that they do not have functional verbal English (report that they are not proficient) or if they request an interpreter for the education session.
Parents who have previously attended an education session about an abnormal hemoglobinopathy trait
Parents who self-report that they have a child with SCD
Parents who self-report that they have SCD.
Parents who report that they or their partner is currently pregnant