Community Health Workers and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care

About the study

This study will compare the effectiveness of two self-management support
interventions-Community Health Workers (CHW) and mobile health (mHealth)-versus enhanced
usual care to improve health-related quality of life and acute care use for transitioning
youth with sickle cell disease (SCD), and identify and quantify mediators and moderators of
intervention treatment effects.

Study point of contact

Caren M Steinway, MPH MSW
516-838-6421
[email protected]
Tanisha D Belton, MPH
215-590-4673
[email protected]

Locations

5 United States sites

Age

> 17 Years

Genotypes

HbSS, HbSC, HbSβ0Thal

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Other

Compensation

Unknown

participation requirements

– Males or females age 17 years or older

– Have sickle cell disease, defined as those individuals with HbSS, HbSC, HbSβ0Thal,
HbSβ+Thal genotypes

– Receive care at a participating pediatric sickle cell disease center.

– Appropriate for transfer to an adult hematologist within 12 months

participation restrictions

– Individuals with an intellectual disability that is severe enough that the individual
would not have the capacity to interact with a mobile or web-based program even with
assistance or have a conversation with a community health worker (i.e. non-verbal).

Locations

  • Hartford, Connecticut, United States, Connecticut Children's Medical Center, 06106 [Recruiting]
  • New Hyde Park, New York, United States, Cohen's Children's Medical Center, 11040 [Recruiting]
  • Cincinnati, Ohio, United States, Cincinnati Children's Hospital Medical Center, 45229 [Recruiting]
  • Philadelphia, Pennsylvania, United States, Children's Hospital of Philadelphia, 19104 [Recruiting]
  • Philadelphia, Pennsylvania, United States, St. Christophers Hospital for Children, 19134 [Recruiting]
Last updated 2021-07-02