|Caren M Steinway, MPH MSW|
|Tanisha D Belton, MPH|
5 United States sites
> 17 Years
HbSS, HbSC, HbSβ0Thal
17 Years -
Males or females age 17 years or older
Have sickle cell disease, defined as those individuals with HbSS, HbSC, HbSβ0Thal, HbSβ+Thal genotypes
Receive care at a participating pediatric sickle cell disease center.
Appropriate for transfer to an adult hematologist within 12 months
Individuals with an intellectual disability that is severe enough that the individual would not have the capacity to interact with a mobile or web-based program even with assistance or have a conversation with a community health worker (i.e. non-verbal).