|Yolanda Johnson, MLS|
1 Month - 5 Years
Diagnosis: sickle cell disease
Age: birth-5 years, inclusive
Eligible for hydroxyurea (genotype SS, Sβ0Thal or other genotype + clinical complications)
Child’s parent, legal guardian, or designated decision maker (caregiver) must participate in both study visits
Child’s parent, legal guardian, or designated decision maker (caregiver) must able to read, understand, and speak English
Parent/legal guardian has previously been approached OR made a decision about whether to initiate hydroxyurea.
Any and all other diagnoses or conditions which, in the opinion of the site investigator or hematologist, would prevent the patient from being a suitable candidate for the study.