KNOWledge and Understanding of Sickle Cell Trait (KNOWUrSCT): A Global Health Disparity Research Study
What is this?
The Sickle Cell 101 research team in collaboration with study investigator have reviewed this information to ensure it is patient-friendly and accurate.
About the Study
This study is being conducted by Sickle Cell 101 to understand our sickle cell and global community’s thoughts on sickle cell trait, genotype awareness, and educational gaps associated with the evolving research about potential complications of sickle cell trait.
The results from this survey will help Sickle Cell 101 create pertinent educational resources and inform the research community on key topics that should be prioritized for sickle cell education and research.
This study is open to everyone to participate. Anyone irrespective of their sickle cell genotype can participate in this study. If you have tested and don’t carry any sickle cell gene, you can participate in this survey. Whether you have been diagnosed with sickle cell disease, have a confirmed diagnosis of sickle cell trait or unaware of your sickle cell genotype, you can also participate in this study. This is also a global research survey and thus anyone irrespective of location can also participate.