An Electronic Patient Reported Pain Assessment in Sickle Cell

Sickle cell disease presents with multiple complications with one that is commonly reported being painful crises. The purpose of this study is to learn more about these painful crises in people with sickle cell disease and how they manage them. A member of the study team will conduct monthly phone calls with participants and conduct one in-person visit in the participant’s home. Participants will receive an electronic study diary from a member of the study team during this in-home visit. With this electronic study diary, participants will be asked to record how they are feeling daily in a process that takes around 5 minutes per day to complete. Participants will also be asked to provide a one-time blood sample of 8mL (about 2 teaspoons) at the beginning of the study to help researchers better understand each participant’s experiences reported.