iCanCope With Sickle Cell Disease: A Mobile Pain Management Intervention for Adolescents

Study point of contact

Tonya M Palermo, PhD
206-884-4208
[email protected]

Locations

3 United States sites

1 Canada site

Age

12 to 18 Years

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Behavioral

Compensation

Unknown

About the study

The project will test a tailored web and smartphone-based application (iCanCope with SCD) to
improve pain self-management and functioning in youth (aged 12-18) with sickle cell disease.
The program will include goal setting, peer-based social support, and pain self-management
training. The investigators will determine initial program effectiveness through a pilot
three-site randomized controlled trial in 160 youth randomized to treatment compared to
attention control.

participation requirements

– aged between 12-18 years

– diagnosed with any type of SCD

– able to speak and read English

– score at least 4 (indicating some days with pain interference over the past month) on
the Sickle Cell Pain Burden Interview

– willing and able to complete online measures

participation restrictions

– significant cognitive limitations that would impair their ability to use and
understand the iCanCope with SCD program, as per their healthcare provider or parent

– have previously received more than 4 sessions of outpatient psychological therapy for
pain management in the 6 months prior to the time of screening.

Locations

  • Hartford, Connecticut, United States, Connecticut Children's Medical Center, 06106 [Recruiting]
  • Atlanta, Georgia, United States, Emory University, 30322 [Recruiting]
  • Seattle, Washington, United States, Seattle Children's Hospital, 98105 [Recruiting]
  • Toronto, Ontario, Canada, The Hospital for Sick Children [Recruiting]
Last updated 2020-11-05 Enroll Now