Parent Intervention to Improve Academic Success in Children With Sickle Cell Disease

Locations

1 United States site

Age

6 to 12 Years

Genotypes

HbSS

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Behavioral

Compensation

Unknown

About the study

Children with sickle cell disease (SCD) are at risk for central nervous system (CNS)
complications, which may affect academic achievement. This study will evaluate an educational
support program for parents that aims to improve academic achievement in children with SCD.

participation requirements

– Children with either HbSS (sickle cell anemia) or HbSβ-thal (hemoglobin S beta
thalassemia) who are between 6 and 12 years of age

– Child’s parent or primary caregiver agrees to participate in the study

participation restrictions

– Child is monolingual in a language other than English and cannot complete standardized
testing in English

– Parent or caregiver of the child is not fluent in English or Spanish

– Child has some other developmental disability not related to SCD. This would include
Down’s syndrome, autism, pervasive developmental disability, cerebral palsy, seizure
disorder, consequences of severe prematurity, or a documented closed head injury that
resulted in loss of consciousness.

– Child has been diagnosed with a significant mental health disorder that is not
responsive to behavioral or medical management. This includes severe depression,
schizophrenia, or bipolar disorder. Children whose mental health problem is
effectively treated are eligible for participation.

Locations

  • Miami, Florida, United States, Mailman Center for Child Development, 33131