Peer-to-Peer (iP2P) Mentoring Program for Youth With Sickle Cell Disease: A Pilot Feasibility Randomized Controlled Trial

Study point of contact

Celia Cassiani, BSc, MSc
416-813-7654 ext 302313
[email protected]
Jennifer N Stinson, CPNP, PhD
416-813-7654 ext 304514
[email protected]

Locations

3 Canada sites

1 United States site

Age

12 to 18 Years

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Behavioral

Compensation

Unknown

About the study

The iPeer2Peer Sickle Cell Disease (SCD) study matches youth (12-18 years of age) with SCD to
a mentor (trained young adult) who has learned to manage their SCD well, transitioned to
adult care, and can support youth participants emotionally and socially. Participants will be
randomly assigned one of two groups, either (1) The intervention group: Study group
participants are matched with a mentor for 15 weeks, and are expected to have up to ten calls
with one another; (2) The control group: This study group will be on a 15 week waitlist to
receive a mentor. This study will first assess the feasibility of conducting this research
with youth with SCD. Also, this study will assess the preliminary effectiveness of peer
mentorship by comparing various health outcomes of the two study groups post-intervention.

participation requirements

– Aged 12-18 years old

– Diagnosed with SCD by a haematologist

– Able to speak and read English

– Access to Internet connection with computer capable of using free Skype software

– Willing and able to complete online measures.

participation restrictions

– Significant cognitive impairments

– Major co-morbid illnesses (medical or psychiatric conditions) likely to influence
HRQoL assessment

– Currently participating in other peer support or self-management interventions.

Locations

  • Hartford, Connecticut, United States, Connecticut Children's Medical Center, 06106 [Recruiting]
  • Ottawa, Ontario, Canada, Children's Hospital of Eastern Ontario (CHEO) [Recruiting]
  • Toronto, Ontario, Canada, The Hospital for Sick Children [Recruiting]
  • Saskatoon, Saskatchewan, Canada, Jim Pattison [Recruiting]