Pilot Study to Assess Patients’ and Health Workers’ Needs Involved in Sickle Cell Disease Management

Study point of contact

Abubakar Abdulkareem, MSc
+2348066664042
[email protected]

Locations

4 Nigeria sites

Age

> 18 Years

Study type

Observational

Gender

All

Interventions

Other

Compensation

Unknown

About the study

This pilot research is aimed to assess the needs of patients and health workers involved in
Sickle Cell Disease (SCD) management in Nigeria. To achieve this, a questionnaire will be
administered to SCD patients or parents of children affected by SCD. Another questionnaire
will be administered to doctors and nurses working with SCD patients. A focus group
discussion with patients/parents willing to participate will be also scheduled. Participants
from the following centres will be involved: Barau Dikko Teaching Hospital Kaduna State
University, Ahmadu Bello University Teaching Hospital Zaria, National Hospital Abuja, Federal
Medical Centre Katsina. Data will be qualitatively and quantitatively analysed and presented
as aggregated data. Consent from all the study participants will be sought. Questionnaires
will be coded and no personal data will be disclosed to authorised third parties.

participation requirements

apply for patients/parents:

– Aged ≥ 18

– Have SCD diagnosis or having a child with a SCD diagnosis

– Attending the centre from at least 6 months

– Nigerian nationality

– Informed Consent signed

The following inclusion criteria will apply for healthcare professionals:

– Working in a SCD clinic

– At least 5 years of experience with SCD patients

– Informed Consent signed

The following

participation restrictions

apply for all participants:

– Informed consent form withdrawal

– Illiterate subjects

– Any psychiatric conditions impairing the participation in this study.

Locations

  • Abuja, Nigeria, National Hospital Abuja [Not yet recruiting]
  • Kaduna, Nigeria, Barau Dikko Teaching Hospital, Kaduna State University [Not yet recruiting]
  • Katsina, Nigeria, Federal Medical Centre Katsina [Recruiting]
  • Zaria, Nigeria, Ahmadu Bello University Teaching Hospital Zaria [Recruiting]