PRIORITY – A Community Registry

In our quest to contribute to the improvement of medical care and making more pharmaceutical options available for people living with sickle cell disease or sickle cell trait, we make clinical studies more accessible. Join our registry to receive updates on new and ongoing clinical trials, and find out how you can become a part of the solution.

Which of the following would you like to see more research for?

    Become a voice in sickle cell research


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    Featured Survey Studies


    Sickle Cell and the COVID-19 Vaccine

    March 25, 2021

    Sickle Cell 101 is conducting a study on the attitudes and impacts of the COVID-19 vaccine in the sickle cell community.


    Determine the Price of Approved SCD Treatment Options

    March 22, 2021

    The purpose of this dissertation is to determine the price of approved SCD treatment options, based on the value offered to the patients.    Participate at


    Sickle Cell Disease Patient Involvement in Clinical Trials

    February 14, 2021

    We want to learn more about your insight, experiences, and preferences relating to sickle cell disease patient involvement in clinical trials. Please share this survey with your friends/family with sickle cell disease.  This study involves a 5-minute survey. At the end of the survey, please enter your email address for a chance to win 1 […]