Sickle Cell Uric Acid (SCUA) – Cohort Repository

Locations

1 United States site

Age

5 to 29 Years

Study type

Observational [Patient Registry]

Gender

All

Interventions

Other

Compensation

Unknown

About the study

The purpose of this research is to study the causes of Sickle Cell kidney disease, as well as
to collect and store samples and information about people with Sickle Cell Disease.

participation requirements

– Age 5-29 years

– Sickle cell disease as diagnosed by hemoglobin electrophoresis, or by newborn screen
per standard of care

– Currently receiving comprehensive sickle cell care at the Children’s Hospital of
Richmond at VCU or in the adult Internal Medicine sickle cell care clinic at VCU.

participation restrictions

– Those who have received organ, stem cell, or bone marrow transplantation. – Those who
require chronic dialysis

Locations

  • Richmond, Virginia, United States, Virginia Commonwealth University, 23298