SMYLS: A Self-management Program for Youth Living With Sickle Cell Disease

Study point of contact

Margie Prentice, MBA
843-792-4771
[email protected]
Shannon Phillips, PhD, RN
843-792-9379
[email protected]

Locations

1 United States site

Age

11 to 17 Years

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Behavioral

Compensation

Unknown

About the study

The purpose of this study is to find out whether a web-based intervention using a mobile
device is helpful for teens learning to care for and manage symptoms of sickle cell disease.
The intervention lasts 12 weeks with a 3-month follow up period, and uses a smartphone or a
tablet.

participation requirements

– diagnosis of SCD as reported by provider

– self-reported history of pain at least once per month

– caregiver/parent willingness to participate

– owns a smartphone

participation restrictions

– not under the care of a provider participant

– cognitive disability or delay that precludes ability to participate, defined as
classified severe neurocognitive deficits as documented by neuropsychological
evaluation in the medical record

– lack of wi-fi access

Locations

  • Charleston, South Carolina, United States, Medical University of South Carolina, 29425 [Recruiting]

More info

View on ClinicalTrials.gov
Site is under construction