| Margie Prentice, MBA | |
| 843-792-4771 | |
| [email protected] |
| Shannon Phillips, PhD, RN | |
| 843-792-9379 | |
| [email protected] |
1 United States site
11 to 17 Years
N/A
Interventional
All
Behavioral
Unknown
The purpose of this study is to find out whether a web-based intervention using a mobile
device is helpful for teens learning to care for and manage symptoms of sickle cell disease.
The intervention lasts 12 weeks with a 3-month follow up period, and uses a smartphone or a
tablet.
– diagnosis of SCD as reported by provider
– self-reported history of pain at least once per month
– caregiver/parent willingness to participate
– owns a smartphone
– not under the care of a provider participant
– cognitive disability or delay that precludes ability to participate, defined as
classified severe neurocognitive deficits as documented by neuropsychological
evaluation in the medical record
– lack of wi-fi access