The primary objective of this study is to better understand factors contributing to variations in hydroxyurea (HU) adherence behavior in adolescents and young adults (AYA) with sickle cell disease (SCD). To meet this objective, the researchers will conduct a prospective cohort study to determine the longitudinal relationship between HU adherence and health-related quality of life (HRQOL) overtime among AYA with SCD. The long-term goal of this research is to promote medication adherence behavior and improve health outcomes in AYA with SCD.
| Sherif M. Badawy, MD, MS | |
| (312) 227-4836 | |
| [email protected] |
| Kathryn King, BS | |
| (312) 227-4825 | |
| [email protected] |
12 Years - 21 Years
Not Applicable
Interventional
All
Other
Age 12-21 years old
Any sickle cell disease genotype
On steady state of hydroxyurea for 2 months
Own or have access to a smartphone
Parents of patients that meet the eligibility criteria and are enrolled in the study will be included
Patients with recent hospitalizations within the past 7 days