Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease

About the study

SCD is an inherited disorder of hemoglobin that affects over 100,000 Americans, most of whom live in low-resourced neighborhoods. Acute SCD complications result in 230,000 emergency department visits and $1.5 billion annually in acute-care expenditures. Prior research indicates that increased disease-specific knowledge correlates with improved clinical outcomes in SCD. Thus, targeting strategies to improve disease-specific knowledge is a high priority in the care of individuals with SCD. Significant evidence describes how educational materials, including online educational programs, can be used to increase disease-specific knowledge. In this study, the investigators will evaluate a mobile phone technology intervention based on the prior evidence that technologies can improve SCD-specific knowledge.

Study point of contact

Robert M Cronin
[email protected]


2 United States sites


18 Years - 70 Years


Not Applicable

Study type






participation requirements

receives care at the community health clinic,
diagnosis of SCD (Hgb SS, SC, Sβ-thal),
ability to speak and understand written English
has access to a smartphone or computer
between 18-70 years.

participation restrictions

lack of access to a smartphone or computer
inability to speak and understand written English


  • Columbus, Ohio, United States, The Ohio State University Medical Center
  • Nashville, Tennessee, United States, Vanderbilt University
Last updated 2021-10-31