Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease

Study point of contact

Robert M Cronin
6159365097
[email protected]

Locations

2 United States sites

Age

18 to 70 Years

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Other

Compensation

Unknown

About the study

SCD is an inherited disorder of hemoglobin that affects over 100,000 Americans, most of whom
live in low-resourced neighborhoods. Acute SCD complications result in 230,000 emergency
department visits and $1.5 billion annually in acute-care expenditures. Prior research
indicates that increased disease-specific knowledge correlates with improved clinical
outcomes in SCD. Thus, targeting strategies to improve disease-specific knowledge is a high
priority in the care of individuals with SCD. Significant evidence describes how educational
materials, including online educational programs, can be used to increase disease-specific
knowledge. In this study, the investigators will evaluate a mobile phone technology
intervention based on the prior evidence that technologies can improve SCD-specific
knowledge.

participation requirements

– receives care at the community health clinic,

– diagnosis of SCD (Hgb SS, SC, Sβ-thal),

– ability to speak and understand written English

– has access to a smartphone or computer

– between 18-70 years.

participation restrictions

– lack of access to a smartphone or computer

– inability to speak and understand written English

Locations

  • Columbus, Ohio, United States, The Ohio State University Medical Center, 43212 [Recruiting]
  • Nashville, Tennessee, United States, Vanderbilt University, 37203 [Recruiting]
Last updated 2020-10-23 Enroll Now