Using Patient-Centered Guidelines in a Technology Platform to Improve Health Care in Adults With Sickle Cell Disease

About the study

SCD is an inherited disorder of hemoglobin that affects over 100,000 Americans, most of whom
live in low-resourced neighborhoods. Acute SCD complications result in 230,000 emergency
department visits and $1.5 billion annually in acute-care expenditures. Prior research
indicates that increased disease-specific knowledge correlates with improved clinical
outcomes in SCD. Thus, targeting strategies to improve disease-specific knowledge is a high
priority in the care of individuals with SCD. Significant evidence describes how educational
materials, including online educational programs, can be used to increase disease-specific
knowledge. In this study, the investigators will evaluate a mobile phone technology
intervention based on the prior evidence that technologies can improve SCD-specific
knowledge.

Study point of contact

Robert M Cronin
6159365097
[email protected]

Locations

2 United States sites

Age

18 to 70 Years

Phase

N/A

Study type

Interventional

Gender

All

Interventions

Other

Compensation

Unknown

participation requirements

– receives care at the community health clinic,

– diagnosis of SCD (Hgb SS, SC, Sβ-thal),

– ability to speak and understand written English

– has access to a smartphone or computer

– between 18-70 years.

participation restrictions

– lack of access to a smartphone or computer

– inability to speak and understand written English

Locations

  • Columbus, Ohio, United States, The Ohio State University Medical Center, 43212 [Recruiting]
  • Nashville, Tennessee, United States, Vanderbilt University, 37203 [Recruiting]
Last updated 2020-10-23