The study will use web-based data collection (SCKnowIQ) and intervention delivery strategies enhanced by nudges and tailored boosters in a sample of 430 adult men and women, aged 18-35 yr with SCD or SCT, at-risk, and planning within 2 years to have a child free of SCD.
| Coordinator | |
| 352-273-6406 | |
| [email protected] |
| Amelia Greenlee | |
| 352-273-6356 | |
| [email protected] |
18 Years - 35 Years
Not Applicable
Interventional
All
Other
Diagnosis of SCD (HbSS, HbSC, HbS-beta-0 thalassemia, and HbS-beta+ thalassemia) or report of SCT (both SCD/ SCT is Hgb electrophoresis confirmed);
Able and intends to conceive a child in the next 2 years (first child or another child);
Speaks and reads English;
18 to 35 years;
At-risk for having a child with SCD (i.e., sexual/ reproductive partner has SCD, SCT, or unknown sickle cell status); and
Wants to avoid the risk of a child with SCD.
The age range is based on typical reproductive age for SCD where median survival is 42 years for men and 48 years for women.
Legally blind;
Physically unable to complete the study questionnaires or the intervention;
Report health history of hysterectomy, tubal ligation, medically or surgically induced menopause, or vasectomy that would
Prevent ability to bear children;
Report a desire to remain childless or have no further children;
Report knowing or being a relative or friend of a participant previously enrolled in the study, or
Previous participation in a CHOICES study.