Sickle cell disease was first discovered in western medicine in 1910 and was discovered to be the first molecular genetic disease. Since then other genetic conditions have surpassed sickle cell disease in terms of treatment options and drug therapies, a great deal of it has to do with the number of people enrolling in clinical studies.
We need more treatment options for sickle cell!
Clinical Studies for Sickle Cell is an interactive resource platform to help promote research for sickle cell disease and trait by providing a search engine of ongoing clinical studies that are recruiting participants. In order for sickle cell research to flourish, these studies need participants living with sickle cell.
On Clinical Studies for Sickle Cell you can:
• Find studies that are right for you based on your preferences (i.e. location, genotype)
• Learn general information about clinical studies
• Ask questions about a specific study or general questions about clinical studies
• Stay updated on current ongoing studies
• Join a mailing list that sends updates on studies
About Sickle Cell 101
Sickle Cell 101 (SC101) is a 501(c)3 non-profit organization based in Silicon Valley, California. Its mission is to globally provide educational resources and content pertaining to sickle cell disease and trait to key community stakeholders, especially patients, caregivers, healthcare providers, and the general public.
SC101’s global platform extends to over 30,000 followers in over 100 countries on social media. SC101 uniquely provides educational material primarily on its digital platforms. Content is always patient-friendly, easily accessible and inspired by patient input and experiences.
The SC101 team is comprised of members directly affected by sickle cell disease and trait and those with a deep passion and understanding of the disorder. Its team has a unique combination of patients, caregivers, certified sickle cell educators and healthcare provider experts.
We send occasional updates that feature new trials, and other great tips.