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Community Conversations

Making an Informed Decision As a Family

4 mins WATCH NOW

Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.

My Contribution to Clinical Studies

3 mins WATCH NOW

Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.

Research for Adults Aging with Sickle Cell

3 mins WATCH NOW

Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.

Research Updates

South Side Resident Takes Part in Rare Sickle Cell Disease Clinical Trial Through UChicago Medicine

18 Sep 2023

Lyric Porter has been a patient at the University of Chicago Medical Center since the day she was born. In 2019, after graduating from college, Porter learned of a clinical trial from her physicians at UChicago Medicine. Along with the other patients in the clinical trial, she saw a decrease in the number of sickle cell crises she experienced — a positive sign for her quality of life going forward.

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FDA lifts its clinical hold on oral therapy FTX-6058 for SCD

01 Sep 2023

The U.S. Food and Drug Administration (FDA) has lifted its clinical hold on FTX-6058, an investigational oral treatment for sickle cell disease (SCD) that’s being developed by Fulcrum Therapeutics.

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Sickle Cell 101 Launches Summer Sickle Cell Trait Awareness and Hydration Campaign with DPJ Football Camp Partnership

31 Jul 2023

Donovan Peoples-Jones (DPJ) continues to partner with Sickle Cell 101 in diverse capacities, including the NFL My Cause My Cleats Campaign to improve education, and research funding for sickle cell disease and sickle cell trait.

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