PINPOINT Study: Gaming Technology to Engage Adolescent Sickle Cell Patients in Precision Pain – Phase II
A study dedicated to learning more about pain management in teens with sickle cell disease through the use of a phone/tablet app.
1 site
13-17 years old
All SCD
Digital survey study
CaRISMA Study
A study where participants use a mobile application on a smartphone to identify ways to manage sickle cell disease.
1 United States site
18 years and older
All SCD
Digital
Venous Thrombosis Biomarkers in SCD and SCT
A study dedicated to learning more about blood clotting – the most common cause of vascular death after a heart attack or stroke in sickle cell disease and sickle cell trait.
1 United States site
18 to 80 Years
All SCD, SCT
Observational
15 Sep 2021
Some physicians believe that since the disease is more prevalent in people of color, it’s historically received far less attention and research dollars.
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14 Sep 2021
American Red Cross has launched an initiative to grow the number of blood donors who are Black to help patients with sickle cell disease, an enduring and often invisible health disparity in the U.S.
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07 Sep 2021
The FDA granted priority review to voxelotor for the treatment of children aged 4 to 11 years with sickle cell disease.
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