Attributional Style and Adherence to Hydroxyurea in Adults with Sickle Cell Disease (HU Adherence Study)
Investigating Hydroxyurea adherence in adult SCD patients, Clinical Psychology Ph.D. candidate Lance Archer's study seeks to improve interventions.
18 to 65
Survey
Yes
N/A
All types of SCD
United States and Canada
Exercise Collapse Associated with Sickle Cell Trait (ECAST)
Sickle cell trait study to determine which sickle cell trait carriers are at risk for Exercise Collapse Associated with Sickle Cell Trait (ECAST).
18 to 45
Other
Yes
N/A
Hb AS - sickle cell trait
US participation only
KNOWledge and Understanding of Sickle Cell Trait (KNOWUrSCT): A Global Health Disparity Research Study
This study aims to explore perceptions of sickle cell trait (SCT), SCT testing, understand related complications/experiences, and develop community-driven resources for SCT.
18 years or older
Survey
Yes
N/A
Open to everyone
Global & Remote
ASCENT1 Study
A research study investigating how well NDec works in people with sickle cell disease.
18 years or older
Clinical
Yes
2
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
US
Canada
An Electronic Patient Reported Pain Assessment in Sickle Cell
A study that aims to gather insights into painful crises in people living with sickle cell disease.
18 years or older
Digital
Yes
N/A
SCD type SS
SCD type Sβ0 thalassemia
USA
Hibiscus Study: An oral investigational medication for SCD
The Hibiscus Study is enrolling adults and adolescents 12 to 65 years old with a clinical diagnosis of SCD. The primary purpose of the study is to evaluate the safety and effect...
12 to 65
Clinical
Yes
2/3
All types of SCD
18 Sep 2023
Lyric Porter has been a patient at the University of Chicago Medical Center since the day she was born. In 2019, after graduating from college, Porter learned of a clinical trial from her physicians at UChicago Medicine. Along with the other patients in the clinical trial, she saw a decrease in the number of sickle cell crises she experienced — a positive sign for her quality of life going forward.
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01 Sep 2023
The U.S. Food and Drug Administration (FDA) has lifted its clinical hold on FTX-6058, an investigational oral treatment for sickle cell disease (SCD) that’s being developed by Fulcrum Therapeutics.
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31 Jul 2023
Donovan Peoples-Jones (DPJ) continues to partner with Sickle Cell 101 in diverse capacities, including the NFL My Cause My Cleats Campaign to improve education, and research funding for sickle cell disease and sickle cell trait.
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