The sickle cell community says...

Sickle Cell Community: Research Testimonials

Making an Informed Decision As a Family

4 mins WATCH NOW

Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.

My Contribution to Clinical Studies

3 mins WATCH NOW

Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.

Research for Adults Aging with Sickle Cell

3 mins WATCH NOW

Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.

Research Updates

Opinion: Time for a closer look at sickle cell disease

24 Nov 2021

With so many American children affected, isn’t it time to boost awareness of sickle cell disease (SCD) with the same rigor we do comparable conditions?

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Sickle cell patients deserve equitable healthcare

22 Nov 2021

I am calling on Health and Human Services Secretary Xavier Becerra and the Biden Administration to convene a group of sickle cell patients, hospital administrators, medical professionals, and pharmaceutical industry representatives to steer their efforts towards equitable healthcare for these patients, and to take steps to ensure that the latest treatments are available to patients […]

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Sickle cell disease: MPs call for major changes after inquiry report reveals shocking failures and racist attitudes in care of patients

15 Nov 2021

MPs are calling for major change in the care of sickle cell patients after “serious failings” identified in an inquiry.

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