The sickle cell community says...

Sickle Cell Community: Research Testimonials

Making an Informed Decision As a Family

4 mins WATCH NOW

Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.

My Contribution to Clinical Studies

3 mins WATCH NOW

Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.

Research for Adults Aging with Sickle Cell

3 mins WATCH NOW

Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.

Research Updates

Fighting through stigmas: Some say racial disparities have long affected sickle cell funding

15 Sep 2021

Some physicians believe that since the disease is more prevalent in people of color, it’s historically received far less attention and research dollars.

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Red Cross initiative aims to increase blood availability for patients with sickle cell disease

14 Sep 2021

American Red Cross has launched an initiative to grow the number of blood donors who are Black to help patients with sickle cell disease, an enduring and often invisible health disparity in the U.S.

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FDA grants priority review to Oxbryta for sickle cell disease

07 Sep 2021

The FDA granted priority review to voxelotor for the treatment of children aged 4 to 11 years with sickle cell disease.

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