Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.
Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.
Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.
A study dedicated to learning more about pain management in teens with sickle cell disease through the use of a phone/tablet app.
13-17 years old
Digital survey study
A study dedicated to learning more about blood clotting – the most common cause of vascular death after a heart attack or stroke in sickle cell disease and sickle cell trait.
1 United States site
18 to 80 Years
All SCD, SCT
24 Nov 2021
With so many American children affected, isn’t it time to boost awareness of sickle cell disease (SCD) with the same rigor we do comparable conditions?Learn more
22 Nov 2021
I am calling on Health and Human Services Secretary Xavier Becerra and the Biden Administration to convene a group of sickle cell patients, hospital administrators, medical professionals, and pharmaceutical industry representatives to steer their efforts towards equitable healthcare for these patients, and to take steps to ensure that the latest treatments are available to patients […]Learn more
15 Nov 2021
MPs are calling for major change in the care of sickle cell patients after “serious failings” identified in an inquiry.Learn more
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