CaRISMA
To identify treatments that do not rely only on opioids or other medications. Participants will use their smartphone to answer questionnaires and interact with a mobile application.
1 United States site
18 years and older
All SCD
Digital
Sickle Cell and the COVID-19 Vaccine
Sickle Cell 101 is conducting a study on the attitudes and impacts of the COVID-19 vaccine in the sickle cell community.
1 Global site
All
All genotypes
Online survey
Venous Thrombosis Biomarkers in SCD and SCT
To study blood clotting in SCD because it is the most common cause of vascular death after a heart attack or stroke.
1 United States site
18 to 80 Years
All SCD, SCT
Observational
28 Apr 2021
The U.S. Food and Drug Administration has cleared the way for a Phase 1 trial of HBI-002, Hillhurst Biopharmaceuticals‘ oral carbon monoxide treatment for sickle cell disease (SCD).
27 Apr 2021
People with sickle cell anemia have higher levels of mitochondrial DNA (mtDNA) — DNA specific to mitochondria, the cell’s powerhouses — circulating in the blood than healthy individuals, likely due to the abnormal retention of mitochondria in red blood cells, a study has found.
22 Apr 2021
A patient diagnosed initially with the blood cancer myelodysplastic syndrome (MDS) after receiving LentiGlobin, Bluebird Bio’s investigational gene therapy for sickle cell disease (SCD), now has a revised diagnosis of transfusion-dependent anemia, the company announced.
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