MOVING SICKLE CELL

RESEARCH FORWARD.

The sickle cell community says...

Community Conversations

Making an Informed Decision As a Family

4 mins WATCH NOW

Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.

My Contribution to Clinical Studies

3 mins WATCH NOW

Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.

Research for Adults Aging with Sickle Cell

3 mins WATCH NOW

Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.

Research Updates

International trial introduces another curative option for sickle cell disease

07 Jul 2024

An international trial has introduced a new treatment that is as safe but more affordable for sickle cell disease as the more well-known gene therapy options.

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Sickle Cell Disease Foundation Announces Research Collaboration with FDA on the Use of Digital Health Technologies to Bridge Health Care Gaps

19 Jun 2024

The Sickle Cell Disease Foundation (SCDF) announced a research collaboration agreement with the U.S. Food and Drug Administration’s (FDA) Center for Devices and Radiological Health (CDRH) to develop best practices for the safe and effective use of artificial intelligence (AI) and machine learning (ML) systems and digitally-derived measures that matter to patients.

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World’s first patient starts sickle cell gene therapy

20 May 2024

Kendric Cromer, a 12-year-old boy in Washington, last week became the first person in the world with sickle cell disease to begin a commercially approved gene therapy that may cure the condition, and change his whole life.

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