Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.
Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.
Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.
01 Jun 2021
Patients at UConn Health’s New England Sickle Cell Institute have a range of advanced health management options available to them. But thanks to a new drug called Adakveo, her disease and quality of life, especially as a mother of 9-year-old son Jermaine, has become a little easier and more comfortable.
30 May 2021
Promising developments in gene therapy have given people with the disease hope that a cure is on the way for an illness that often causes organ failure and premature death. But the first such therapy is more than a year from regulatory approval.
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