CaRISMA
To identify treatments that do not rely only on opioids or other medications. Participants will use their smartphone to answer questionnaires and interact with a mobile application.
1 United States site
18 years and older
All SCD
Digital
Sickle Cell and the COVID-19 Vaccine
Sickle Cell 101 is conducting a study on the attitudes and impacts of the COVID-19 vaccine in the sickle cell community.
1 Global site
All
All genotypes
Online survey
Venous Thrombosis Biomarkers in SCD and SCT
To study blood clotting in SCD because it is the most common cause of vascular death after a heart attack or stroke.
1 United States site
18 to 80 Years
All SCD, SCT
Observational
01 Jun 2021
Patients at UConn Health’s New England Sickle Cell Institute have a range of advanced health management options available to them. But thanks to a new drug called Adakveo, her disease and quality of life, especially as a mother of 9-year-old son Jermaine, has become a little easier and more comfortable.
01 Jun 2021
The Saudi Food and Drug Authority (SFDA), in Saudi Arabia, will review Emmaus Life Sciences’ application for the approval of its oral medication Endari (L-glutamine) for treating sickle cell disease (SCD).
30 May 2021
Promising developments in gene therapy have given people with the disease hope that a cure is on the way for an illness that often causes organ failure and premature death. But the first such therapy is more than a year from regulatory approval.
We send occasional updates that feature new trials, and other great tips. We will not spam you.
