The RISE UP Study seeks to determine whether mitapivat, an investigational oral therapy, works to improve the health of red blood cells in individuals living with SCD.
16 years or older
years or olderClinical
No
3
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
USA
Canada
Oman
...
This study is being conducted by Sickle Cell 101, UCSF Benioff Children's Hospitals, and BCH Diversity, Equity, Inclusion and Anti-Racism Council to address racism in SCD care.
18
years or olderSurvey
Yes
N/A
All types of SCD
Global & Remote
Investigating Hydroxyurea adherence in adult SCD patients, Clinical Psychology Ph.D. candidate Lance Archer's study seeks to improve interventions.
18
to65
Survey
Yes
N/A
All types of SCD
United States and Canada
Sickle cell trait study to determine which sickle cell trait carriers are at risk for Exercise Collapse Associated with Sickle Cell Trait (ECAST).
18
to45
Other
Yes
N/A
Hb AS - sickle cell trait
US participation only
This study aims to explore perceptions of sickle cell trait (SCT), SCT testing, understand related complications/experiences, and develop community-driven resources for SCT.
18
years or olderSurvey
Yes
N/A
Open to everyone
Global & Remote
A research study investigating how well NDec works in people with sickle cell disease.
18
years or olderClinical
Yes
2
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
US
Canada
07 Jul 2024
An international trial has introduced a new treatment that is as safe but more affordable for sickle cell disease as the more well-known gene therapy options.
Learn more19 Jun 2024
The Sickle Cell Disease Foundation (SCDF) announced a research collaboration agreement with the U.S. Food and Drug Administration’s (FDA) Center for Devices and Radiological Health (CDRH) to develop best practices for the safe and effective use of artificial intelligence (AI) and machine learning (ML) systems and digitally-derived measures that matter to patients.
Learn more20 May 2024
Kendric Cromer, a 12-year-old boy in Washington, last week became the first person in the world with sickle cell disease to begin a commercially approved gene therapy that may cure the condition, and change his whole life.
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