Jewel is a teenager living with sickle cell disease. She and her mother, Paula make informed decision about participating in clinical studies.
Ada Gonzalez lives with sickle cell disease and enrolled in a clinical study decades ago that she benefits from today.
Andre, an adult living with sickle cell disease, talks about the need for treatment options for the aging and future generations with sickle cell disease.
A study dedicated to learning more about pain management in teens with sickle cell disease through the use of a phone/tablet app.
13-17 years old
Digital survey study
A study dedicated to learning more about blood clotting – the most common cause of vascular death after a heart attack or stroke in sickle cell disease and sickle cell trait.
1 United States site
18 to 80 Years
All SCD, SCT
15 Sep 2021
Some physicians believe that since the disease is more prevalent in people of color, it’s historically received far less attention and research dollars.Learn more
14 Sep 2021
American Red Cross has launched an initiative to grow the number of blood donors who are Black to help patients with sickle cell disease, an enduring and often invisible health disparity in the U.S.Learn more
07 Sep 2021
The FDA granted priority review to voxelotor for the treatment of children aged 4 to 11 years with sickle cell disease.Learn more
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