Survey Studies

Knowing what’s important to the community, helps to inform us about the type of content to feature. Our survey studies are also designed to uncover the thoughts, needs and motivations of people living with sickle cell disease and trait, as well as others with interest in this disease state. Your opinions matter and could potentially influence future research. Check out the list below and select the ones that are right for you.

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Sickle Cell and the COVID-19 Vaccine

March 25, 2021

Sickle Cell 101 is conducting a study on the attitudes and impacts of the COVID-19 vaccine in the sickle cell community.

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Determine the Price of Approved SCD Treatment Options

March 22, 2021

The purpose of this dissertation is to determine the price of approved SCD treatment options, based on the value offered to the patients....

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Sickle Cell Disease Patient Involvement in Clinical Trials

February 14, 2021

We want to learn more about your insight, experiences, and preferences relating to sickle cell disease patient involvement in clinical tr...

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