The Pioneer Study
This study explores the potential benefits of a daily oral medicine for sickle cell disease called Pociredir.
18 to 65 years
Clinical
Yes
1
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
United States
South Africa
Nigeria
...
Transplantation of Clustered Regularly Interspaced Short Palindromic Repeats Modified Hematopoietic Progenitor Stem Cells (CRISPR_SCD001) in Patients With Severe Sickle Cell Disease
The goal of this study, conducted by UCSF and UCLA, is to determine if a potential gene therapy, called CRISPR_SCD001, is safe for and improves the health of individuals with SCD.
12-35 years
Clinical
Yes
1/2
SCD type SS
United States of America
Using Community Based Research Practices to Advance Anti-Racism in Sickle Cell Disease Clinical Care
This study is being conducted by Sickle Cell 101, UCSF Benioff Children's Hospitals, and BCH Diversity, Equity, Inclusion and Anti-Racism Council to address racism in SCD care.
>18 years
Survey
Yes
N/A
All types of SCD
Global & Remote
KNOWledge and Understanding of Sickle Cell Trait (KNOWUrSCT): A Global Health Disparity Research Study
This study aims to explore perceptions of sickle cell trait (SCT), SCT testing, understand related complications/experiences, and develop community-driven resources for SCT.
>18 years
Survey
Yes
N/A
Open to everyone
Global & Remote
ASCENT1 Study
A research study investigating how well NDec works in people with sickle cell disease.
18
Clinical
Yes
2
SCD type SS
SCD type SC
SCD type Sβ0 thalassemia
....
US
Canada
An Electronic Patient Reported Pain Assessment in Sickle Cell
A study that aims to gather insights into painful crises in people living with sickle cell disease.
18
Digital
Yes
N/A
SCD type SS
SCD type Sβ0 thalassemia
USA
05 Dec 2024
A recent study found that automated red blood cell exchange (aRBCX) can greatly improve the quality of life for people with sickle cell disease (SCD). The study reviewed over 20 years of data and showed that aRBCX helps reduce hospital stays, pain-related hospital visits, and procedure times, making it a promising treatment option for SCD.
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18 Oct 2024
The Gazelle™ Hb Variant Test was found to be an effective tool for accurate and affordable newborn and premarital screenings when compared with high-performance liquid chromatography (HPLC).
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07 Jul 2024
An international trial has introduced a new treatment that is as safe but more affordable for sickle cell disease as the more well-known gene therapy options.
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